Harper progress

Our little warrior

Every time I sit down to write the only thing I could think of was, “Brain. Fried. Harper. Good.” By the way, please read that using a caveman voice because that is the most accurate way to describe my ‘tired speak.’ I’m still tired. And my brain is forever fried. Extra crispy. We have been …

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Happy tears

Friday night through Sunday was rough but we thought it was some “normal surgery stuff”. Late Sunday night Harper’s blood oxygen saturation starting dropping into dangerous levels. A routine X-ray showed her left lung had partially collapsed. She battled all night. Fighting recurring partial lung collapses on both sides. Her left lung would come back …

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Dr. Mendeloff

We first met Dr. Mendeloff in January and knew he was special. We are constantly impressed by him. Yesterday, was no different. He has the utmost confidence in his ability and experience, and yet, he is so empathetic and sensitive towards us. He knows we are scared. He truly cares for Harper and we are …

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Back in ICU

Harper is fighting hard to be comfortable right now. We are back in the ICU for the night as a precaution. She remains on oxygen to help her breathe easier. Her insertion site is painful. She is tired and I can see it on her face. Will you please pray for rest? Harper is now …

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Smiling more and more

Harper is working incredibly hard during Physical, Occupational, and Speech Therapy. In hospital world small steps are a BIG deal. Harper is spending more and more time with her hands open and thumbs out. HUGE deal. Harper is REACHING for toys. Her shoulders have been super tight and her comfort zone was arms tucked into …

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Super woman

Through it all, she looks at me with the sweetest gaze and I find comfort that I can calm her with my touch. Goodness knows I desperately need to feel as if I make a difference for her. Twice today only I was able to comfort her and I thought my heart would burst. You …

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Back in the hospital

Harper has a pretty serious intestinal infection in which air builds up in the walls of her intestines and could perforate, leaking bacteria into the bloodstream. The good news…we caught it very early. The bad news…we are back in the hospital for at least 2 weeks. Harper is getting alternating doses of two different antibiotics …

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ICU

All was well until Friday evening. Harper’s heart rate would suddenly drop to the 60s-70s when it should be in the 120s. Her saturation levels would drop to the 50s-60s when it should be in the 80s. Her respirations would drop to the 10s when it should be in the 30s. She did this 4 …

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